It's hard to believe that only two months ago, I got my bone marrow
transplant. How have I been faring since I have been released from the
hospital?
In a word: tired
This is totally normal and expected. My body is busy making the new
bone marrow my own and also building up a brand new immune system.
This is very hard work and leaves me extremely fatigued.
And it's not just physical fatigue. It's mental fatigue too. Send an email? Maybe
tomorrow. Make those phone calls? Later - can't think now. Write the blog? Next
week, when I have more energy.
I spend a great deal of my day on the couch, either watching television, or napping.
And it's okay. Took me a while to accept that it is okay that I'm not busy. My body
won't actually allow me to be busy. I run one or two errands and have to lie down.
Ivy and I are still great friends. But I spend less time with her than I used to. I only
have to do two hours of IV infusion every day instead of four. This is huge! I can
easily squeeze two hours of inactivity into my day. Four hours was a bit much.
I've had some shortness of breath. Not sure why. I have some tests next week to rule
out anything vile. Hoping that all is well. I worry.
I'm already past day 60 of my 100 days of super restrictions. I got the go-ahead to go
to the beach (as long as I wear water shoes) and I can go into the ocean up to my waist.
On a super good note, I am 99% engrafted, which means 99% of my sister's marrow has
made a home in my body.
Not too bad overall! And if you would like to visit, just give me a call or an email. I
would love to see you!
Happy 4th of July!
