I have just passed 100 days post transplant! Had a doctor's appointment
this afternoon that included the obligatory bone marrow biopsy. But
more importantly, I got several restrictions lifted.
I can eat real pizzaria pizza!!
I can also go out to restaurants (but no salad yet and no sushi yet either).
I can wear makeup!
I can go out without my mask and gloves.
I can go down into the basement (this means I can sew)
I can do laundry (meh)
I can't yet clean the house, which I'm crying over (ha ha).
And no gardening yet either. But one step
at a time.
Hooray for me!
Tuesday, August 15, 2017
Tuesday, August 1, 2017
Pierce to Vent
I am getting very close to the end of my 100 days super restriction period.
It has gone well, overall, despite some stomach and breathing issues, which
seem to have been fixed with medication.
The one thing that has remained very difficult for me is the food. I cannot have
any food from outside the house - no restaurants, takeout, or home-cooked
deliveries. I can have frozen food like Stouffers Mac and Cheese and whatever
I can find from Trader Joes.
I am getting just a little bit tired of all of my food requiring me to "Pierce
to Vent" before inserting into the microwave oven.
The other day, we got a pizza delivered. Some of the cheese had slid off the
pizza into the corner of the box. It took all of my willpower not to scoop up
that cheese and pop it into my mouth. I want a real pizza. I want to go out
to dinner with the Hubs. I want to actually cook a meal myself.
As for cooking, the Hubs cooks sometimes. And Eli has been grilling for me. I can
have home-cooked food as long as it's made in my home. So maybe once a week
or so, I have some non-frozen food to eat.
Why all the hullabaloo over the food? Stomach issues are very common in post-transplant
patients. And my immune system is still recovering. If you add in food that is not
tightly controlled, you make things harder for the doctors to diagnose.
I have been very good about my food, and my stomach issues were still hard to diagnose.
I think I am now getting the right medicine, but if I were eating whatever I wanted,
I would only cloudy the waters.
There are many days where I feel like King Richard the Third: "A pizza! A pizza! My
kingdom for a pizza!".
Soon. Very soon.
It has gone well, overall, despite some stomach and breathing issues, which
seem to have been fixed with medication.
The one thing that has remained very difficult for me is the food. I cannot have
any food from outside the house - no restaurants, takeout, or home-cooked
deliveries. I can have frozen food like Stouffers Mac and Cheese and whatever
I can find from Trader Joes.
I am getting just a little bit tired of all of my food requiring me to "Pierce
to Vent" before inserting into the microwave oven.
The other day, we got a pizza delivered. Some of the cheese had slid off the
pizza into the corner of the box. It took all of my willpower not to scoop up
that cheese and pop it into my mouth. I want a real pizza. I want to go out
to dinner with the Hubs. I want to actually cook a meal myself.
As for cooking, the Hubs cooks sometimes. And Eli has been grilling for me. I can
have home-cooked food as long as it's made in my home. So maybe once a week
or so, I have some non-frozen food to eat.
Why all the hullabaloo over the food? Stomach issues are very common in post-transplant
patients. And my immune system is still recovering. If you add in food that is not
tightly controlled, you make things harder for the doctors to diagnose.
I have been very good about my food, and my stomach issues were still hard to diagnose.
I think I am now getting the right medicine, but if I were eating whatever I wanted,
I would only cloudy the waters.
There are many days where I feel like King Richard the Third: "A pizza! A pizza! My
kingdom for a pizza!".
Soon. Very soon.
Subscribe to:
Posts (Atom)