We just dropped my daughter off at the airport yesterday for a school sponsored trip to Ireland and Scotland. A few months ago, I had started looking into a short trip to Iceland while she was gone.
That was before. Before the low blood counts. Before the Grand Fatigue. Before my twice weekly visits to the chemo chair for platelets.
I would love to just plan a day trip. Anywhere.
But I am still very much in the same postition I was in a month ago - low counts, especially
platelets. Low energy. A bit of a low mood.
I just started a new treatment last week that may or may not help to bump up those counts. Time will tell. I had to start the treatment, which is a pre-leukemia medication, because there were a few
abnormal cells in my bone marrow. Docs don't like abnormal. This treatment is supposed to get rid of them. That's good. I don't want them either.
The thing that would really help me is Blast of Brenda Booster™ but the docs still have not decided on that yet. I went through a slew of testing a couple of weeks ago. I was convinced that my lymphoma was back (it's not). I also had an echocardiogram (heart's fine) and an endoscopy. It's the endoscopy that's gumming things up. There is confirmed GVHD in my stomach. So if they do BOBB™, they might aggrivate things. I should know for sure what the final decision is sometime next week.
In the meantime, I just drag myself around. I am on call at all times - do I need blood products? Do I need to go for any testing? Do I need to see anyone anytime? I drop everything and go. It's hard to make plans living this way. Not that I have the energy right now for plans. I have to carefully map out my day - when can I accomplish things? When will I have the most energy?
I hope by the next post, things will have improved. I'm coming up on a year post-transplant (May 3rd!) and I would love to share some good news by then!
